NRS 434V Group PP Week 4 1

 NRS 434V Group PP Week some 1 Dissertation

CYSTIC FIBROSIS

Lori Alley

Erika Lemerande

Nicole Carpenter

Maureen Joseph

June Reyes

Scientific Description and Definition of

the condition.

" Cystic Fibrosis can be described as life threatening, genetic disease that causes persistent chest infections, and progressively limits the ability to breathe” (" Cystic Fibrosis, ” n. m. ).

Pathophysiology and

History of

the Disease

• Cystic Fibrosis is brought on by defects in

the cystic fibrosis gene.

• Cystic Fibrosis was recognized more than 400

yrs ago in Australia.

• There is no cure intended for Cystic Fibrosis.

Impact on Adults to the Health

Care Program and Nursing Practice

• Increased heath care costs

• More than crowed clinics

• Individuals received significantly less personal

interest

• Limited number of medical center beds

• Nursing education

Impact with the Disease about Childhood

• Altered body image

• Disadvantaged relationship with peers

• Impact of living with a chronic disease

Impact in the Disease in Adults

• Burden of attention increases

• Taking even more medicines and receiving

more treatment options.

• Chest damage is definitely greater in adulthood

than earlier in every area of your life.

• Fertility issues (Heintz, 2010, pra. 6)

Reasons People with VOIR are

living into Adulthood

• GENE THERAPY

• ANTIMICROBIAL REMEDY

• THE CURRENT CF TREATMENT

CENTER

• MUCOLYTICS

• MUCOCILIARY CLEARANCE

Impacts this kind of Disease could have

on the Adult Client.

• Mentally and emotionally

• Physically

• Sexually

• Economically, particularly as it relates to the ability to get health insurance and health care

• Susceptibility to engage in substance abuse

• Prenatal proper care and childbearing (see further slide)

• Occupational factors and risks (see extra slide) • Ability to handle stress (see additional slide)

Pregnancy

Being pregnant

is now

conceivable

with cystic

fibrosis

Being pregnant

• Need for Prenatal Care

• Pregnancy Statistics

• Focus on Family Planning

Infertility causes

• The majority of guys

with cystic fibrosis

possess associated

inborn bilateral

lack of the vas

deferens ( mutations,

1995).

• Woman infertility is usually

less clear. There is

a theory that the

vaginal mucosa is to

thick for semen

passage. Additional

reasons are thought

to be low BMI, poor

nutrition, and

chronic illness

(Hodges, 2008).

Choosing a profession

• Cystic Fibrosis probably should not

prevent one from pursuing the

career they seek

• Some occupations pose better

health risks to get Cystic Fibrosis

patients

(Careers, 2013)

Understanding how to cope

The key is to limit stress by simply:

– Knowledge: ask, watch, study and read

– Support: organizations, get in touch with various other families that know the rules.

– Planning: getting through everyday life will be overwhelming, write a daily plan.

– Strength: tend not to listen to very well meaning individuals with

negative guide listen to your healthcare services

(About, 2014).

Outcomes to get the Mature Patient

• Adequate air passage clearance

• Reduction of risk elements associated with

respiratory infections

• Ability to carry out activities of daily living (ADLs)

• Lively participant in planning and implementing

a therapeutic routine

Health Testing / Overall health

Promotion as well as Health Affluence /

Education For Adults with CF

• Screening / Promotion:

•Genetic testing

• Health Involvement /

Education:

•Airway Measurement Techniques

•Inhaled Medications

•Nutrition

•Fitness

•CFTR Modulators

•Lung Transplantation

Ensuring the best possible upcoming

• Establish a

routine

• Be persistent

• Learn to juggle

Relevant Resources

(Community & National) for

Adults with VOIR

• Great advancements – Cystic Fibrosis Base

(Central Oregon 2015)

http://greatstrides.cff.org

• Cystic Fibrosis Living http://cfliving.com

• Support * Education 5. Hope

http://cysticfibrosis.com

References

Regarding cystic fibrosis. (n. m. ). Retrieved from https://www.cff.org/What-is-CF/About-Cystic-Fibrosis/ Alma, L. (2014, 06 10). Tips on how to Cope Once Living With Cystic...

References: from the Vas Deferens — NEJM. (1995, June 1). Retrieved August a few, 2015.

• Pregnancy and cystic fibrosis. (2008, The spring 1). Gathered August five

• Internal impact

• Sharma, G. (2015). Cystic fibrosis. Gathered from

http://emedicine.medscape.com/article/1001602-overview#a3

journal of Value Health. of sixteen, 3345-55

• Vandenbranden, S i9000

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